life interrupted.
a photographic memoir of paediatric brain cancer
Looking through the lens of my camera, I felt less anxious and more confident and comfortable being in the hospital - instead of seeing the painful side of my experiences I saw a place full of innovation, creativity and life.
I started noticing the art, the people, the lines, shapes and light.
It really made me look at the environment differently and that’s when I discovered the power of photography.
- Dylan Negri
DRIFT
Multiple anaesthetics for surgeries, lumbar punctures and other medical procedures
STITCHED
Brain surgery, I had just turned 13 and life as I knew it felt like it had been ripped apart
MALIGNANT
The tumour was the size of a golf ball
SCORCHED
Whole brain and spine radiation for six weeks - mask strapping me to the table
FALL
Until the leaves fall, you can still tell it is summer
DRIPPED
Three different types of chemotherapy - Cyclophosphamide, Vincristine, Cisplatin, for four months.
SICK
Feeling sick was a constant companion, continuing throughout my treatment and beyond
HOPE
Some scars are visible and some are not
ERODE
If my skull was glass you would see the damage brain cancer has done to me
MEDICATE
Late effects from the treatment that saved my life are gradually developing requiring daily medication
COURAGE
Each bead represents a different treatment, procedure or event. These help to share the story if my experiences through treatment